Completely AZ: Little Help?
 

As some of you may, or may not, have noticed, I haven't been around here very much. I've been going through a rather rough period in my personal life that eventually resulted in a visit to my GP, which led to a psychiatric referal, which in turn led to an eventual diagnosis of paranoid schizophrenia.
I've been put on medication, & am seeing a therapist fairly often & seem to be getting better, but I'm at the point now where I have to tell my friends & family about it. I know there's a good few people around here with experience (personal or otherwise) of similar conditions and I was just wondering if they had any advice on that? Things to avoid saying are my main concern, since what I now understand to be dellusions caused me to do things that have really upset some people that are close to me and explaining this to them is going to be hard enough and I'm just worried I'll end up saying something that makes it worse.
So... to repeat the subject line, little help?

Re: Completely AZ: Little Help?
 

Hey AZ.

I've sent you a PM.

Re: Completely AZ: Little Help?
 

Wow... sorry to hear about you being ill. Good that you're getting better though, so many people struggle on with these things for years without ever getting diagnosed, to the point where they can't ever get their lives back. You will probably have downs as well as ups, but keep with the meds and the counselling.

As for informing people... that's hard. In some cases it may be that the best way to do it is by writing letters. No-one can interrupt you or divert the course of the conversation with a letter, so that way you can say exactly what you want/ need to say and no more, no less. If you do this, I'd advise writing the letter(s), putting it aside for a day or two, and then re-reading them before sending them, just to make sure you've said everything exactly as you meant to. I know you to be very fluent and articulate when writing, so I very much doubt you'd be able to give anyone the wrong idea in a letter, but if you're really worried about it get someone you really trust and who already knows about your condition (counsellor?) to read the letter as well before sending.

As for things to avoid saying, well I guess it depends on the people you are dealing with. Obviously you know better than I do how they will react, but in most cases the only thing to avoid saying would be anything untrue. Keep to the important stuff though, unnecessary details will just complicate matters, and you can always bring them up some other time if need be. Acknowledge anything you've done that's hurtful, explain why it happened and why it won't happen again. If necessary, explain anything that you think the other person needs to change if you think they are partly at fault, or give them some 'warning signs' to look out for that might indicate that you're having a bad day/ not yourself.

And don't worry too much. People can be very understanding about things like this, especially if they've known and liked you for a long time. Some people may even surprise you in this regard. If you've just started behaving differently recently, then they'll probably be relieved to find out the reason behind it and to hear that the 'old you' is on the way back.

Oh, I've also heard that writing can be very therapeutic. Why not nip over to the HifH thread somewhen soon? http://forum.shrapnelgames.com/image...es/biggrin.gif

Re: Completely AZ: Little Help?
 

As the resident board physician, I empathize with both you and your family and friends. This is a very difficult disease to control.

One of the biggest problems I see with patients, when I was in medical school in psychiatric wards and as an out-patient clinician now, is denial. Patients will ignore symptoms that they know perfectly well are returning symptoms when either they stop taking their medication (usually because they feel better off them or their psychoses/delusions have resolved) or the medication needs to be adjusted in some way.

Contact your psychiatrist/physician early. If things aren't right for a few days, let them know. They may do nothing, schedule a follow-up or see you in the office.

The point is, nobody (family, friend, yourself, your doctor(s)) want you doing something to yourself or someone else when you truly are not in your right mind. You are your best advocate.

This holds true for other illnesses - depression, diabetes, etc. Take ownership of your problem, keep a journal, write episodes on a calendar, take that to your visits and sessions to talk about.

Paranoid schizophrenia may be a lifelong disorder, but you shouldn't give up.

PM if you need more info.

Chris McWhorter, M.D.

Re: Completely AZ: Little Help?
 

I'm really sorry to hear about that. But I do know that, as Dogscoff said, people can be very understanding. I know that people who know you and who are close to you, they'll understand. I don't think it'll be as easy as you think for you to say something that'll make things worse. But, again as Dogscoff said, writing may be the easiest and most sure-fire way to be sure of what you want to say.

Most of all, know that you will have the support of those close to you. They will understand.

Re: Completely AZ: Little Help?
 

Well, I've got schiziophrenia, major depression and a touch of paranio, so...

Anyway, one important thing is to learn the 'feel' of thoughts that are irrational and learn to block that out.

I don't know if you're religious, but praying helps a lot for me.

Pills - Get in the habit of taking them, no matter what. Absolutly the first thing I do in the morning is stagger over to my pills and take them. *Then* I have a drink, go to the bathroom, etc.

Stress will do bad things to your sanity. Learn to recognize stress, and find some way to relax.

In relation to that, you also won't be able to do as much as you could before. Don't try, not yet. Sometimes, you will, but a lot of times, you're going to have to accept doing less than you could before.

A pet - You may already have one, but if you don't, consider getting one. Pets provide non-stressfull interaction - And you'll probably find interacting with people to get stressfull sometimes.

Re: Completely AZ: Little Help?
 

Agent Zero,

I speak as a family member of someone diagnosed with schiziophrenia and clinical depression. I truly hope your family is blessed likes ours, in that we love each other despite our illnesses. We always knew my family member
was "different", but we never imagined the actual illness. But it comes down to this: we love him, just as I hope your family loves you, no matter what.

It's hard for me to not to feel guilty. I often wonder, why him and why not me? Maybe your friends and family will be feeling the same when you explain to them what is going on. Take heed in Narf's advice. Learn your limitions and live by them. Those who love you will adjust and learn to accept. The important thing is to take care of yourself.

PS I don't think you should worry about hurting those you love. I'll bet they'll be relieved to have an explanation and know you're getting the help you deserve.

Re: Completely AZ: Little Help?
 

Hmmm... and that last post, as I recall, was a question about a character in one of your stories with paranoid delusions. Did the search for information about your character lead you to realize that certain things you were experiencing were 'not normal'?

Good luck on the treatment. If you stick with the medication, schizophrenia isn't necessarily debilitating anymore.

As for how to inform your family, I would say don't be in a rush. If you're just recovering it probably wouldn't be wise to rush into more stress too quickly. You are living overseas, right? Well away from home? Don't you have a few months before you have to go home? Rather than seek a quick solution, maybe it is best to use the time to consider the situation thoroughly.

Re: Completely AZ: Little Help?
 

Some time to build up your courage is good; but if you do that, set a definite time.

Also, telling your family you want to discuss something at that time can help.

Basically, don't give yourself a chance to chicken out.

Re: Completely AZ: Little Help?
 

Well my credentials are that I am mildly autistic (Aspergers, an inability to interact correctly with "normals":)) and am schitzotypal. The most important things for me is to make sure I take my medication and my family, I don't have any close friends. It is good that you have discovered your problem, I wasn't diagnosed until I broke down in public about 6 years ago, all the sympyoms were there, I was supposed to be hyperactive as a child, but once diagnosed the medication stopped some personality traits I had. Some times I forget my medication but this becomes apparent when I feel nervous the next day. I don't want to start explaining all my problems (which is another one of my problems http://forum.shrapnelgames.com/images/smilies/happy.gif) but I take alot of comfort in this forum. As I mentioned I have trouble with people face to face, but I am very at ease here where I can edit my responses.

Re: Completely AZ: Little Help?
 

Actually I do have a bit of helpful advice. It might work only for me, but when I start to feel nervous, or "Freaking out" as I call it, I find a nice lie in a hot bath does wonders to calm me down.

Re: Completely AZ: Little Help?
 

I'd like to thank you all for your advice & support. I do rather wish the rest of my friends were as understanding. I had a sit down with my housemates last night where I explained what had been going on, since they had been worried about me. Afterwards, I left them for a couple hours to talk it over amongst themselves, and when I came back I found they'd come to the conclusion that they didn't feel comfortable having me in the house anymore and want me to move out. I explained to them that I wasn't dangerous & that the lies that had so upset them were a symptom of the illness (to put it simply). Unfortunately, they're sticking to their original decision.
I've decided to head back to Canada, since I don't really have anywhere else to go. Fortunately, my family was a lot more supportive, & are doing all they can to help me get home. My sister, who is good friends with a couple of the housemates, said she'd have a word with them to see if she could get them to give me a bit more time, at least enough to get whatever records & need off the doctors & get all my stuff boxed up.
Still, all in all, I think it's a pretty crappy ending to my time living in Ireland.



PS: Anybody have any ideas on shipping a computer overseas?

Re: Completely AZ: Little Help?
 

Wow, that sucks AZ. Can't you find somewhere else to live? Still, if they don't understand and aren't prepared to give you a chance then maybe you're better off without them.

As for shippign the PC: If it's not a state of the art wowbox I'd rwecommend taking the hard drive out, selling the rest of the hardware, then using the money to buy a new home for your HD when you reach your destination.

Re: Completely AZ: Little Help?
 

I'm so sorry. Please believe it will get better and all things for a reason. Isn't that what keeps us going?

Re: Completely AZ: Little Help?
 

Well, I've talked to them a bit more, and while they still want me to go, I'm at least not getting the bum's rush. They seem to feel that I'd be best off with my family around me, & I tend to agree. The tension in the house has dropped by quite a bit & they're starting to treat me a bit more 'normally'. That's probably due to a combination of them having a bit of time to adjust & me being just so goshdarn likeable http://forum.shrapnelgames.com/images/smilies/wink.gif . Still, I have to say I'm rather amazed at the amount of junk I've collected over the years and figuring out how to get all of it home is going to be a nightmare.
There's just one thing I'm a bit worried about. The last few days, I've been hearing a strange buzzing noise, but there's never anyone around for me to ask if they hear it too. So what's kind of bugging me is if, somehow, the doctors managed to make a mis-diagnosis (not bloody likely, but bear with me), could the medication I'm taking be causing me problems? ie: a non-psychotic taking anti-psychotics would begin to exhibit psychotic symptoms?
There's a lot of things in the house that could be making the strange noise, & it being in my head is last on my list of causes but the fact that it only started after I started on my medication bugs me a bit...

Re: Completely AZ: Little Help?
 

Depending on what Medication you're on it can be an uncommon Side Effect of the drugs. I certainly remember 'Ringing in the Ears' being a side effect on some of the drugs I used to take.

You might want to research the Side Effects of the medication you're on.

Re: Completely AZ: Little Help?
 

Ear plugs should help you decide if it is a real sound coming from the house or not.
Tinnitus is annoying.

Re: Completely AZ: Little Help?
 

I agree with RD and SJ. Of course it could be a side-effect or tinnitus (ear ringing). The best idea would be to sit in a room you've heard it before with another person, being completely quiet and seeing if you both hear it. If you do and they don't, I start looking at the medications or another symptom of the schizophrenia.

Re: Completely AZ: Little Help?
 

Actually, psychiatric illnesses are still highly likely to be misdiagnosed. You're usually going by what someone says about their inner experience, not a truly objective 'lab test' as with physical illness. People who are seeing aliens or hearing voices or whatnot can usually be pretty certain they got the right diagnosis when the drugs make the aliens disappear and/or the voices stop, though. http://forum.shrapnelgames.com/images/smilies/happy.gif

But a 'non-psychotic' taking anti-psychotic medications wouldn't experience any different side-effects from the actual psychotic. It's the same medication either way. So you ought to research the medication as already suggested and see if 'ringing in the ear' or other auditory effects are among the known side-effects.

Re: Completely AZ: Little Help?
 

Definitly get it checked out, both to see if it is in your head and talk to your doctor.

Re: Completely AZ: Little Help?
 

As an additional note, sometimes when our tv is breaking down a little more, it starts squeeling, really high-pitched. My sister and I can hear it; nobody else can. Maybe you just have sensitive hearing.

Re: Completely AZ: Little Help?
 

tv's produce a high freq noise when on which is audible to some individuals usually a genetic trait ( dad a tvtech since he was a "kid" due to his "ear" 2yrs dead and me not brother ) other side of topic the others are way more qualled (wallpaper quals) than i so i refrain